Give me some advice about living with HD

It can be hard when someone you love has HD.  There can be lots of changes to cope with.  Because of the brain cells that are dying, people with HD can change a lot as they become more unwell.  They may not be able to do things with you the way they used to.  They may sometimes get angry with you and be rude to you.   Try to remember that it is the illness that makes them do this.  IT IS NOT YOUR FAULT – or theirs.  They still love you but cannot show it as well because of the changes in their brain.

Other people might not understand the changes in the person with HD.  You can explain it’s because they aren’t well – maybe you could show them this website and help them understand HD better.

It is important for you to talk to people you trust about how you feel. If people you trust know what’s going on they can try and help you.  Maybe you could talk to a relative, a friend or even a teacher. It’s good to have someone to talk to!