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Juvenile Huntington's Disease (JHD) refers to anyone who develops signs or symptoms of HD before they are 20 years old. It is a relatively rare condition and only about 5% of people affected with HD will develop symptoms this young. This can make it quite an isolating experience for the person affected by HD, their family, and any professionals that are helping them. The Youth Service does not have the knowledge or experience to provide support to children affected by JHD, but this can be sought from elsewhere within the SHA (e.g. From a local Specialist HD Nurse) or the HDA (www.hda.org.uk/juvenile). However, we do provide support to siblings of children affected by JHD.
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