Juvenile Huntington's Disease

Juvenile Huntington's Disease (JHD) refers to anyone who develops signs or symptoms of HD before they are 20 years old. It is a relatively rare condition and only about 5% of people affected with HD will develop symptoms this young. This can make it quite an isolating experience for the person affected by HD, their family, and any professionals that are helping them. The Youth Service does not have the knowledge or experience to provide support to children affected by JHD, but this can be sought from elsewhere within the SHA (e.g. From a local Specialist HD Nurse) or the HDA (www.hda.org.uk/juvenile). However, we do provide support to siblings of children affected by JHD.

 
 
General Information
What's it like for Children and Y.P
Talking and Listening
Support Available
Juvenile Huntington's Disease
Further Information and Reading
 
 
Congrats Kirsten and Simon!
Summer Camp 2010
 
 
Easter Activities
Open Disussion
Welcome
Parent DVD
Possible topics for discussion
         
 
 
 
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