Welcome to the Scottish Huntington's Association Youth Service website for children and young people

You are probably visiting our website because you are a young person living in a family with Huntington's disease (HD for short). You may have always known about HD in your family, or you may have found out recently. Whatever your family situation we hope the information on our site will be of help to you and we welcome any comments or suggestions you may have about it.

The project has two Young People's Advisors - Karen Keenan (North/East Scotland) and Kirsten Walker (South/West Scotland). Their main role is to provide information, support and advice on an individual and group basis for children and young people living in a family with HD. There are young people from all over Scotland who use the Youth Service and many of you are keen to meet others in the same situation. You can do this by getting involved with our group activities (see noticeboard) and/or through the chatroom, discussion board or our new BEBO page (see www.bebo.com/SHAyouth ). Through these you can meet and talk with other young people living in a family with HD.

You should also check out the Noticeboard for more information about any forthcoming events.

If you would like to contact Karen you can phone her on: 01224 485526, or email her at: youthinfo@hdscotland.org

If you would like to contact Kirsten you can phone her on:

0141 5562136, or email her at: shayouth@yahoo.co.uk