Scottish
Huntingtons
Association Illustrated
Pages
Facing the Challenge
Our History
The Scottish Huntington’s Association (SHA) was formed in
1989 by families living with the disease. In
1992 the first part-time professional advisor was employed, funded by Mental
Illness Specific Grant, to
identify need in Lothian. Evidence was unequivocal; the needs of families
living with this devastating disease
were overwhelming. Families were excluded from society: the health and social
impact of the disease was
devastating. In 16 years and following a considerable amount of hard work from
families and professional
staff, the Association has grown significantly and manages 35 staff throughout Scotland
providing expert
care to families living primarily in their own homes. Just as importantly,
support is offered by families for
families via a network of local family support groups.
Accessible Information
This site includes publications and factsheets for people
living with HD, their carers and Health Professionals. They can be accessed by
downloading
Adobe Acrobat Reader. These publications may prove helpful
for people wishing to find out more about HD and ways of coping with the
illness.
Communication Online
The site has various options for people wishing to contct
the association for advice. Keep in touch with others affected by HD via our Feedback,
Discussion Board and
Ask facilities. Younger members of the HD community can
access our Young People
site. It includes online information, a
discussion forum and chat facility.
Sarah's Story
Sarah Winkless, Olympic Bronze Medalist Rowing Champion and
HD gene carrier.
In my early teens, there was a change in Mum. Her behaviour
became strange and erratic; she was prone to mood swings and seemed to lose the
natural
grace of her movements. Unfortunately as time passed, the symptoms, worsened.
It became clear that something strange was happening to her. This was
my introduction to Huntington’s disease. Read Sarah's Story in full in our Tell your Story section.
Simple Donations
There are various ways to give online via the Just Giving site. Give via your
credit or debit card and set up Personal Fundraising Pages . Visit the site to
help you decide whether you wish to financially support us. Thankyou!
Scottish Huntingtons Association,
Thistle House, 61 Main Road,
Elderslie, PA5 9BA,
Tel; 01505 322245,
email: sha-admin@hdscotland.org.uk
The Scottish Huntington's Association is
a Registered Charity: No 121496.