Scottish
Huntingtons
Association Illustrated
Pages
Frequently Asked Questions
What do we do?
- We offer expert, committed,
informed, honest and practical support within the HD community.
The following is a summary of the key aims of the association:
- To promote, through
information and education, greater public and professional understanding
of the
complex issues associated with HD – in particular on issues relevant to
Health, Welfare and Social
Justice.
- To significantly improve
the quality of life for children and adults living with HD.
- To maintain, develop and
support a range of Specialist Information and Advisory Services for
children, adults and their families living with
HD throughout Scotland.
- To provide specialist
assessment and information relevant to the management of HD
- To support and encourage
the establishment of SHA Branches and Support Groups throughout
- Scotland by encouraging
empowerment of individuals and families
- To develop effective links
with Health, Social and other Statutory and voluntary agencies involved in
the care of HD, providing advice,
information and campaigning to improve the level and standard of care for
those affected by HD
- To promote and support
relevant research in relation to the scientific, medical and social
aspects of HD
- To promote
non-discrimination regardless of gender, race, language, religion,
disability or background
Scottish Huntingtons
Association,
Thistle House, 61
Main Road,
Elderslie, PA5 9BA,
Tel; 01505 322245,
email: sha-admin@hdscotland.org.uk
The Scottish Huntington's Association is
a Registered Charity: No 121496.