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Sarah's Story
Sarah Winkless,
Olympic Bronze Medalist Rowing Champion and HD gene carrier.
Counting
the days to school holidays, fighting with my brother and Sunday afternoon
walks with Mum, Dad
and the dog are all fond memories of my childhood. I remember happy times and
my family was much like
most of my friend’s. Then, in my early teens, there was a change in Mum. Her
behaviour became strange and
erratic; she was prone to mood swings and seemed to lose the natural grace of
her movements. At the time we put it down to post-natal depression after the
birth
of her fourth child, my sister Imogen. Unfortunately as time passed, the
symptoms, rather than passing, worsened. It became clear that something more
sinister was happening to her. This was my introduction to Huntington’s
disease. It had no name and no explanation. All we could do was look on and try
to be supportive.
Mum had no wish to see a doctor and the only thing we could do was to investigate homeopathy and improve her diet. It wasn’t until about ten years later,
when she was finally persuaded to have some testing, that she was positively diagnosed and I really began to understand what was happening to her. With
Mum’s diagnosis I, and my other brothers and sister realised
that we were also at risk of having the gene which leads to
my situation and some six months later in the spring of 1997
I discovered I too, was positive.
Sport always has been a huge part of my life and on August 21st 2004 I won an
Olympic bronze medal for
are not won overnight and many years of training went into my performance on that day. It was an incredible feeling to have achieved something that had been
a dream for so long, and receiving my medal was one of the proudest moments of my life. Mum was in the crowd, proudly watching from her wheelchair, and
to be able to put my laurel wreath on her head and my medal
around her neck meant a great deal to me. The way she has dealt with
so much. Her character and sense of humour shine through even though she finds it difficult to express herself. She is an incredible woman, the way she has done
as much as she can, for as long as she can, is a constant inspiration. She has fought the disease every step of the way and, although perhaps sometimes in my
sub-conscious, I know the strength she gives me.
We have been incredibly fortunate, if anything the family has been strengthened
my Mums’ illness. We make certain that she is included in everything the family
does, no matter how awkward her heavy wheelchair can be, or the strange looks we get from people who don’t understand. I can’t pretend that I don’t sometimes
look at Mum and wonder if how she is now is what the future holds for me. What I do know is that as, when, if I am affected by the disease, those around me will
be better equipped physically and emotionally to deal with it than I was with Mum, thanks to the work of organisations such as the Scottish Huntington’s Association (SHA).
Scottish Huntingtons Association,
Thistle House,
Tel; 01505 322245,
email: sha-admin@hdscotland.org.uk
The Scottish Huntington's Association is
a Registered Charity: No 121496.