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Scottish Huntingtons Association        Illustrated Pages
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2007 Family Conference

 

The SHA is looking for a family branch to host next year’s family conference. The Fife branch did a fantastic
job organising last year’s conference in North Queensferry and we’re looking for an enthusiastic branch eager
to become involved. If you and your branch would like more information or to volunteer, please contact head
office on 01505 322245.

 

Family Fun Day & BBQ

Glasgow South Family & Friends Branch invite you to a family fun day and barbeque

Saturday 4 August 2007
12-3pm
Calderglen Country Park
Strathaven Road
East Kilbride


There will be a bus available at the Millenium Hotel in George Square at 11.30am. The bus will leave Calderglen Country Park at 3.15pm & arrive back at George Square at approximately 4.00pm.

To book transport please contact Irene Brown 0141 810 4182 or Jan McMenemy 0141 637 8707 (Booking essential).

This promises to be a fun day out with face painting, tombola, cake stall, games and a book stall. Please come along and support your local branch.

 

Misleading TV Storyline

 

ITV’s popular drama The Royal featured a storyline about HD. It was slightly misleading as it was claimed there was no genetic test, however the programme

is set in the 1960s and that would be accurate for that time period. HD has featured in a number of programmes over the past few years, some were more

true to life than others, however they have raised awareness of HD to many thousands of homes throughout the UK: the Eastenders storyline (good) and

Holby City (at best misleading and at worst wholly inaccurate). The SHA is often approached by TV production companies and newspapers wanting to feature

families. If you or your family would be interested in raising awareness of HD through speaking to the press or appearing on a programme, please contact head

office on 01505 322245.

Sign up for e-Bulletin

The SHA are keen to start sending out the What’s On publication as an E-Bulletin. Long term, this will help us reduce postage and printing costs. We recognise
that not everyone has a computer and internet access, so we’ll continue to send the What’s On out in magazine format to all on our mailing list. However if you

would prefer to be sent the ebulletin, please send us an email at head office and we’ll add you to our mailing list. Please Contact Us adding your name and address.


Scottish Huntingtons Association,
Thistle House, 61 Main Road ,
Elderslie , PA5 9BA
,
Tel; 01505 322245,
email: sha-admin@hdscotland.org.uk
The Scottish Huntington's Association is
a Registered Charity: No 121496.

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