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Scottish Huntingtons Association        Illustrated Pages
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Links

Carers

 

Caring about Carers

Department of Health Web Site for Carers.

 

Huntington's Disease

Huntingtons Disease Organisations

Huntington's Disease Association

The web site of the Huntington's Disease Association of England and Wales

Australian Huntington's Disease Association

(Huntington's Australia)

Hereditary Disease Foundation

A very useful site for discovering how much is being invested in current research.

Huntington's Disease Advocacy Centre

Superb resource for families with lots of information about the latest research, personal accounts of living with HD and advice.

Huntington's disease Society of America

This site has lots of helpful information and provides updates about the research funded by the Association.

Huntington's Disease Association of Northern Ireland

The official web site of the Northern Ireland Huntington's Disease Association.

Huntington's disease Society of Canada

A good site for downloading publications.

New Zealand Huntington's Disease

Link to the New Zealand web site

 
A site set up to give advice and support to people caring for someone with Huntington's disease.

The Princess Royal Trust for Carers
A superb resource for anyone caring for someone with illness or disability.

West of Scotland Carers Forum

Helpful advice for those living in the West of the country.

Young Carers

Information and advice for young people who are looking after someone.

Carers UK

 

Caring for people with HD


The Genetic Interest Group (GIG.org.uk):

Supporting those affected by genetic disorders


HD Caregivers

Research

Huntington's disease Study Group

The Huntington Study Group (HSG) is a non-profit group of physicians and

other health care providers from medical centers in the U.S., Canada, Europe and

Australia, experienced in the care of Huntington patients and dedicated to clinical

research of Huntington's disease.

Euro HD
Brand new european wide initiative to create opportunties for improved research

in HD.

 

The Lighthouse
An excellent source of information for all of the latest and breaking research news.



Links to Medical Information

The Human genome project

The National Human Genome Research Institute led the Human Genome Project for the National Institutes of Health, which culminated in the
completion of the full human genome sequence in April 2003. This site provides the latest information about the project.

Hopes

Provides an interesting history of HD as well as a nice guide to the way the brain functions.

National Institute of Neurological Disorders and Stroke

Provides some useful information about Huntington's disease and current research.

Health Channel

A guide to the Genetics of Huntington's disease.


Scottish Huntingtons Association,
Thistle House, 61 Main Road,
Elderslie, PA5 9BA
,
Tel; 01505 322245,
email: sha-admin@hdscotland.org.uk
The Scottish Huntington's Association is
a Registered Charity: No 121496.

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