Carers |
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Huntingtons Disease Organisations |
Department of Health Web Site for Carers.
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The web site of the Huntington's Disease Association of England and Wales |
A site set up to give advice and support to people caring for someone with Huntington's disease. |
Australian Huntington's Disease Association
(Huntington's Australia)
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A superb resource for anyone caring for someone with illness or disability. |
A very useful site for discovering how much is being invested in current research. |
Helpful advice for those living in the West of the country. |
Superb resource for families with lots of information about the latest research, personal accounts of living with HD and advice. |
Information and advice for young people who are looking after someone. |
This site has lots of helpful information and provides updates about the research funded by the Association. |
Carers UK
Caring for people with HD
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The official web site of the Northern Ireland Huntington's disease Association. |
The Genetic Interest Group (GIG.org.uk): supporting those affected by genetic disorders
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A good site for downloading publications. |
HD Caregivers
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Link to the New Zealand web site |
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| Research |
Links to Medical Information |
The Huntington Study Group (HSG) is a non-profit group of physicians and other health care providers from medical centers in the U.S., Canada, Europe and Australia, experienced in the care of Huntington patients and dedicated to clinical research of Huntington's disease. |
The National Human Genome Research Institute led the Human Genome Project for the National Institutes of Health, which culminated in the completion of the full human genome sequence in April 2003. This site provides the latest information about the project. |
Brand new european wide initiative to create opportunties for improved research in HD. |
Provides an interesting history of HD as well as a nice guide to the way the brain functions. |
An excellent source of information for all of the latest and breaking research news. |
Provides some useful information about Huntington's disease and current research. |
General
Web site of the Scottish Executive, providing detalied news, events and information about the work of the executive.
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A guide to the Genetics of Huntington's disease.
Cancer and Palliative Care Information Service
CAPCIS is an internet information gateway which aims to provide an organised, easily-accessible and up-to-date directory of key services, service providers and appraised information on cancer and progressive, life-limiting conditions. The main purpose of CAPCIS is to support Argyll and Clyde patients, carers and healthcare professionals.
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