Welcome to Scottish Huntington’s Association

  • WHAT IS HD - Huntington’s disease (HD) is a hereditary illness which means it is passed through families. It is a neurological condition and is part of a group of diseases which affect the brain and central nervous system. In HD specific brain cells stop working properly and then die.
  • GET INVOLVED - We are always looking for new ideas and ways to raise funds for the charity. If you want to get involved then find out all you need to know here.
  • WHAT IS SHAYP - It's the Scottish Huntington’s Association Youth Project which works with young people aged 8-25 living in families affected by Huntington’s disease.
  • VOLUNTEERING -The Wellbeing Volunteer will be offered meaningful and rewarding activities appropriate to their availability, location, knowledge, skills and length of time commitment as well as his/her expressed interests and needs.
  • CONTACT US - Anything you want to find out about or ask a question? If so send us a quick email or give us a call...


The Scottish Huntington’s Association (SHA) was established in 1989 by families living with the condition with the aim of significantly improving the quality of life of everyone touched by it.

The charity exists to tackle the inequalities in health and social care provision, ensure families are better connected to support and services and increase the capacity of other agencies through training and education.


What’s the best way to tell your kids there’s a hereditary disease in the family ? Declan and other young people in families with Huntingtons tell their stories and give their advice to parents. Honest, moving, and surprisingly upbeat, please take a look…

Comments are closed.