Welcome to Scottish Huntington’s Association

  • WHAT IS HD - Huntington’s disease (HD) is a hereditary illness which means it is passed through families. It is a neurological condition and is part of a group of diseases which affect the brain and central nervous system. In HD specific brain cells stop working properly and then die.


The Scottish Huntington’s Association (SHA) was established in 1989 by families living with the condition with the aim of significantly improving the quality of life of everyone touched by it.

The charity exists to tackle the inequalities in health and social care provision, ensure families are better connected to support and services and increase the capacity of other agencies through training and education.


What’s the best way to tell your kids there’s a hereditary disease in the family ? Declan and other young people in families with Huntingtons tell their stories and give their advice to parents. Honest, moving, and surprisingly upbeat, please take a look…

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